Two Disabled Dudes - Living with Urgency
Kyle Bryant, Sean Baumstark • Business, Education, Non-Profit, Self-Improvement
Kyle Bryant, Sean Baumstark • Business, Education, Non-Profit, Self-Improvement
Two Disabled Dudes - Living with Urgency
Kyle Bryant, Sean Baumstark • Business, Education, Non-Profit, Self-Improvement
Kyle Bryant, Sean Baumstark • Business, Education, Non-Profit, Self-Improvement

About

The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast. Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch. Join us, subscribe, and tell a friend!

Episodes

  • 250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation
    Our friends at Jett Foundation invited us into their community once again for a conversation with 5 panelists on Rare Disease Day. We were honored to moderate the discussion with these friends: Race Martinez - Architecture Student, living with...
  • 249 - 20 Years in the Making: REATA's Story of Skyclarys
    This episode delves into the journey of Skyclarys, the first FDA-approved treatment for Friedreich's ataxia (FA), a rare genetic disorder. The discussion features Dr. Colin Meyer, former executive at Reata Pharmaceuticals, who shares his...
  • 248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer
    In this insightful interview with Jen Farmer, CEO of the , we explore the evolving landscape of rare disease research and the journey towards treatments for Friedreich's ataxia (FA). Jen shares her experiences and challenges as a leader in the field,...
  • 247 - Tenacity and the Power of Persistence
    In this episode, Sean and Kyle discuss the importance of maintaining discipline and focus, particularly in the face of distractions and competing priorities. The conversation delves into the concept of knowing what one wants and being clear about...
  • 246 - Empowering Accessibility, One Review at a Time
    In this episode, we discuss the groundbreaking work of , a platform revolutionizing accessibility for people with disabilities. Roll Mobility functions as a Yelp-like app, providing users with vital information on the accessibility of restaurants,...
  • 245 - Settle or Soar? Embracing Uncertainty
    The Dudes talk about life changes and the significance of pursuing growth and opportunities, even in the face of uncertainty. Reflecting on personal anecdotes and advice, they underscore the value of acceptance, adaptation, and gratitude in embracing...
  • 244 - Change & Consistency with Progressive Disease
    In Episode 244, the Dudes delve into the topic of change and consistency, particularly in the context of living with progressive diseases like Friedreich's ataxia (FA). They discuss the challenges of navigating constant change, setting expectations,...
  • 243 - EveryCure and the Power of Collaboration w/ Dr. David Fajgenbaum
    In this episode, Dr. David Fajgenbaum shares his journey of discovering a drug that saved his own life. He emphasizes the importance of repurposing existing drugs for new uses and highlights the potential of artificial intelligence in identifying such...
  • 242 - Dave Lynch: 27 Years, 700+ Patients, and the First Treatment
    Dave (Dr. Lynch), a seasoned clinician and researcher specializing in Friedreich's ataxia (FA), sheds light on his nearly three-decade journey at the forefront of FA care. Throughout the conversation, Dave emphasizes the indispensable role of patient...
  • 241 - Feeling Helpless? Here Are 4 Ways To Help
    For Rare Disease Patients, the drug development process can feel huge and overwhelming. It seems like everyone has a role to play; Doctors, researchers, advocacy organizations, pharma industry...we can see how they all fit in the process. What...
  • 240 - Adapting to Life's Curveballs
    Adapting to changes is a big part of life for everyone. Listen as The Dudes discuss their approach to adapting. In this episode: Kyle uses a voided ID to get past TSA on his way to North Carolina and back. Newsworthy from Instagram: The Dudes...
  • 239 - Season Premier - Are You a Doer or a Talker?
    Listener Brian lets the Dudes know that Kyle has in fact been driving illegally for 10 years. Does Kyle have a plan to address this dilema? In the Season 11 premiere, Kyle and Sean dive into the challenges and triumphs of pursuing dreams,...
  • 238 - Season Finale - The Dynamics of Friendship
    In episode 238, The Dudes delve into the theme of friendship, highlighting the significance of chosen family and exploring the dynamics of their own unique bond. They draw inspiration from questions curated by MindPath Health, leading to an unscripted...
  • 237 - The Vital Role of Caregivers in Rare Disease Advocacy
    We are thrilled to have Effie Parks and Daniel DeFabio in this powerful episode! Together, we discuss the pivotal role of the caregiver’s voice in the realm of healthcare, particularly in the context of rare disease. Our dialogue revolves around the...
  • 236 - A Mom's Perspective on Devastation and Gratitude
    Sean and Kyle engage in a heartfelt conversation with Caley Caroll, a mother, caregiver, and fierce advocate for her son Whitten John and his health challenges. Whitten John was diagnosed with Diabetes Insipidus and Langerhans Cell Histiocytosis, two...
  • 235 - Addressing the Epidemic of Wheelchair Damage by Airlines
    Zach Wichter joins us to discuss the massive, yet not-so-commonly known incidents of damage to mobility devices caused by airlines. Zach is a consumer travel reporter for USA Today and focuses much of his writing on air travel specifically. Zach...
  • 234 - World Duchenne Awareness Day - Jett Foundation
    The Dudes recently had the privilege to host a virtual panel for Jett Foundation's celebration of World Duchenne Awareness Day 2023. This panel includes Patients, Caregivers, and Medical Professionals. Some of the topics discussed include:...
  • 233 - Should Disability Heighten Our Sense of Responsibility?
    In this episode, Kyle and Sean discuss various incidents that prompt them to contemplate the responsibilities and expectations within the disabled community. The dudes discuss whether people with disabilities sometimes misuse their rights or...
  • 232 - Can Rare Disease Create Heroes?
    Episode 232 welcomes Matt LaFleur who shares his journey as a rare disease patient with Friedreich's ataxia (FA). Matt talks about how he transitioned from viewing himself as a victim of FA to seeing himself as a hero in his own story. He describes...
  • 231 - Speak Up, Stand Out: Silence is Not Advocacy
    In this conversation, Sean and Kyle discuss the concept of advocacy and its various forms. They reflect on their experiences with advocacy, from meeting with legislators for rare disease-related issues to everyday interactions. They emphasize the...