The Wheeler CentreSociety & Culture, Technology

Episode Summary

Spurred by watching his own father die painfully, in 2015 Andrew Denton set out to investigate – why are good people being forced to die bad deaths?  Five years later, Victoria is the first state in Australia to have passed a voluntary assisted dying law. In the first year of the law’s operation, over 120 people sought assistance to die. More than a year into its operation, it is possible to look at the hypothetical harms (and genuine fears) raised by those opposed to the law and compare them with the actual experience of assisted dying. Paul, Michelle and Jean Caliste, with a photo of Robbie — Paul, Michelle and Jean Caliste. Photo: Michael Gleeson, ABC News supplied by Go Gentle Australia In the first episode of season two of Better Off Dead, we meet the family of 36-year-old Robbie Caliste. Robbie was diagnosed with motor neurone disease (MND) in the same year the Victorian parliament endorsed medical assistance to die. In November 2019, he became the youngest person to die under the law. Robbie and his parents Jean and Michelle help us understand the word which, more than any other, underpins what this law is all about; a word beyond ‘pain’ – suffering. “He didn't want Motor Neuron Disease to win ... He didn't want to be literally that prisoner in the body and looking at you with his eyes. It had done enough damage to him and he knew what the outcome was going to be.” – Jean and Michelle Caliste
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